Health Canada granted priority review to an application seeking approval of vamorolone, marketed in the U.S. as Agamree, for ...

I recently had the opportunity to attend a Singaporean theater production titled “Supervision,” thanks to the SingHealth Patient Advocacy Network (SPAN). SPAN is a collective of patients and ...

The determination comes after recruitment and dosing in certain trials were paused after a young patient died due to acute ...

Columnist Patrick Moeschen, anticipating his own historic anniversary, celebrates champions of the disability rights movement ...

Lisa Littleton, who is the mother of two sons with Duchenne muscular dystrophy, one passed and one living, is a full-time caregiver. She describes the difficult balance between pushing for care and ...

Betty Vertin, mother of three sons with Duchenne, shares her journey of managing treatment, mental health, and parenting ...

Shalom Lim, who has Duchenne muscular dystrophy, shares how caregivers can support patient autonomy when it comes to ...

Hawkin Miller, who has Duchenne muscular dystrophy, shares motivation and advice for staying on track with treatment.

When living with Duchenne muscular dystrophy, taking a gamble feels better than not doing anything at all, columnist Betty Vertin writes.